This is Owen Shelly’s fundraising site. The funds will be used for medical costs and related expenses not covered by insurance.
Status Update: December 4, 2016
Now that the holiday season is here we thought it would be appropriate to share how thankful we are for Owen’s continued improvement following his lung transplant on July 28, 2016. Unfortunately, he did experience two setbacks following scheduled bronchoscopies that resulted in collapsed lungs (pneumo-thorax). Each episode was quite painful and required a week’s stay in the hospital, insertion of chest tubes, and additional medications. Owen has now been home for two months and has regained his strength.
Currently, Owen has regular appointments, weekly blood tests and is being monitored by his medical team. He and his wife Lindsey, and their three children will remain in San Antonio, Texas, so he can be in close proximity to the lung transplant and pulmonary health professionals. Owen’s goal is to return to Idaho, possibly by late spring.
We all appreciate your friendship, support and continued prayers for Owen and his family. We are blessed that Owen’s quality of life has significantly improved and he is able to be home with his family.
In 2012, Owen was diagnosed with pulmonary capillary hemangiomatosis (PCH) which is characterized by an overabundance of capillaries in the lungs and can cause pulmonary hypertension (PH) and heart failure. Owen now has both PH and heart failure which makes the simplest tasks of daily living impossible. The only treatment remaining for his worsening condition is lung transplant.
Owen and his wife Lindsey have three children, Tiler, Lionel, and Lucy, ages 6, 4, and 2. They must now relocate to a major transplant center to place him on a waiting list for a double lung transplant. Owen currently enjoys songwriting, reading, and spending time with his family. After recovering from transplant, he plans to return to Idaho to the Wood River Valley, which he loves.
This April, Owen had to take medical disability from his job in Twin Falls, Idaho at the State Department of Health and Welfare where he worked as a service coordinator for the infant/toddler program. He worked diligently in this position for more than five years while dealing with medical procedures, hospitalizations, and regular appointments in Salt Lake City. Owen was a committed resource to many of the program’s clients in the Wood River Valley and surrounding areas.
In 2004, Owen’s younger brother, Tyler, died from PCH/PH at age 20. Their grandmother also passed away in 2003 from complications from pulmonary hypertension. Owen’s parents live in Bellevue and Hailey and his sister resides in Boise. Lindsey’s parents live in Twin Falls, and Corpus Christi, Texas.
Thank you for supporting and donating to Owen Shelly’s fundraiser. Our goal is to raise $100,000. According to the Economic Policy Institute, a family of 5 would require $75,702 in Salt Lake City, Utah or $69,851 in San Antonio, Texas to maintain a modest yet adequate standard of living for one year. These estimates are determined by calculating monthly expenditures including housing, food, childcare, transportation, and health care not covered by insurance. Other monies would be needed for relocation expenses, insurance premiums, transplant aftercare, and medications.
To learn more about pulmonary hypertension, please visit www.phassociation.org
Owen, his family and friends appreciate your support! Be sure to check back periodically for updates!